Another question that came up in response to my ISAD
conference submission (The Right Time to Break Out the Stickers – see previous
post) was around my opinion of family involvement in the therapy process. Following are the questions and my answers.
Q: In class we are learning about
how important it is to employ a “family based treatment” where not only does
the SLP work with the child who stutters, but also educates the family and is
interested in the family’s opinions and concerns about their child. Did any of the speech therapists that worked
with Eli also work with you and your husband to teach you what you could do at
home to help Eli, or just talked to you about your questions or feelings about
how Eli was progressing? Stacey
A: I’m not a speech therapist, but
in my opinion, “employing a family-based treatment” is only helpful depending
on exactly what you are asking the family to do. We felt that we were employed when
the therapist helped us to understand the speech tools and ways we could
practice at home. I begged for this involvement as I could not imagine he would
ever be able to use these naturally without lots and lots of practice. Same
with educating the family…depends on what you’re educating them to do…how to
make fewer speech errors, or keeping them talking and engaged in the world
around them. Too often the family involvement is hinged on practicing speech
tools and working to transfer these into their real world. There is so much a
family can do to encourage talking, to keep talking fun, to enhance
communication, and to build on what the child does well and with a passion. And
this can be done without risk of silence and withdrawal.
Q:
Did the speech-language pathologists who treated your son ever take an approach
to therapy that included the entire family system? Do you feel this would have been
beneficial? Laura
A: One speech therapist included
Eli’s brothers, dad, and myself in some of the sessions. She also had Eli bring
a friend once. Was it beneficial — not really. Is it a good idea? Depends on the focus of the
therapy. Is it necessary? Absolutely. How’s that for confusing?
As a parent, I think therapy should
focus on keeping the child talking, addressing the emotional aspects, and
minimizing anxiety around communication. If this is the focus, then
parental/family involvement is pretty crucial. If the focus is on eliminating
disfluencies, then family (and teachers and grandma) can turn into the speech
cops. Surrounding a child with speech cops runs the risk of increased anxiety,
silence, and withdrawal.
Additional thought: Insurance companies insist that speech therapists
can only bill for time spent directly with the child or at least having the
child present. It is my understanding
that they cannot bill for time spent alone with the parent. This puts extensive communication with a
parent on the back burner. And yet, in my opinion, extensive time with parents is critical to the process. A speech therapist can help parents create an environment where their child enjoys talking, communication is relatively stress-free and anxiety is kept at a minimum.
So "family-based therapy” can look very different from therapist to therapist. Again, I think it's critical to the process, but it can also be damaging, depending on what the family is being instructed to do. I will definitely do more research around how this approach is presented academic systems.... feel free to enlighten me!
Best,
Dori Lenz Holte
Best,
Dori Lenz Holte
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